8,303 responses from 2,076 respondents to 4 items.
| Description | PROMIS Self-Efficacy for Managing Symptoms short form 4a (4 items, 1-5), U.S. adults with hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder |
|---|---|
| Reference | Estrella, E., & Frazier, P. A. (2024). Healthcare experiences among adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder in the United States. Disability and Rehabilitation, 46(4), 731-740. |
| DOI | 10.1080/09638288.2023.2176554 |
| Licence | CC BY 4.0 |
| Source data | https://osf.io/gsr7j/ |
| Responses | 8,303 |
|---|---|
| Respondents | 2,076 |
| Items | 4 |
| Response categories | 5 |
| Responses per respondent | 4.000 |
| Responses per item | 2075.750 |
| Density | 1.000 |
| Longitudinal | FALSE |
| sample | Clinical, Internet-based |
|---|---|
| measurement tool | Survey/questionnaire |
| item format | Likert Scale/selected response |
| primary language(s) | eng |
cov_agecov_areacov_employmentcov_gendercov_heds_dxcov_hsd_dxcov_incomeiditemresp
Or load it directly in R or Python:
# R
install.packages("remotes")
remotes::install_github("itemresponsewarehouse/Rpkg")
library(irw)
df <- irw_fetch("estrella_2023_promis_se")
# Python
pip install irw
import irw
df = irw.fetch("estrella_2023_promis_se")
@article{Estrella_2023, title={Healthcare experiences among adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder in the United States}, volume={46}, ISSN={1464-5165}, url={http://dx.doi.org/10.1080/09638288.2023.2176554}, DOI={10.1080/09638288.2023.2176554}, number={4}, journal={Disability and Rehabilitation}, publisher={Informa UK Limited}, author={Estrella, Emma and Frazier, Patricia A.}, year={2023}, month=Feb, pages={731–740} }
| IRW version | v470 |
|---|---|
| Redivis dataset | item_response_warehouse_6 v4.0 |
| Redivis dataset DOI | 10.57761/4e8w-c240 |
| Manifest pin for this IRW version | v4.0 |
| Metadata source | irw_meta v29.0 |