estrella_2023_hakim5

10,625 responses from 2,125 respondents to 5 items.

About this table

DescriptionFive-item hypermobility questionnaire (Hakim & Grahame 2003), yes/no, 2,125 U.S. adults with hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder
ReferenceEstrella, E., & Frazier, P. A. (2024). Healthcare experiences among adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder in the United States. Disability and Rehabilitation, 46(4), 731-740.
DOI10.1080/09638288.2023.2176554
LicenceCC BY 4.0
Source datahttps://osf.io/gsr7j/

Size and shape

Responses10,625
Respondents2,125
Items5
Response categories2
Responses per respondent5
Responses per item2,125
Density1
LongitudinalFALSE

Classification

sampleClinical, Internet-based
measurement toolSurvey/questionnaire
item formatLikert Scale/selected response
primary language(s)eng

Item text

This table has item text in the IRW: the wording administered to respondents, not just the response codes.

InstrumentFive-part questionnaire for joint hypermobility (Hakim & Grahame 5PQ)
Mean words per item14.800
Mean characters per item80.200
Mean characters per response2.500
Flesch-Kincaid grade level5.679

Columns

cov_agecov_areacov_employmentcov_gendercov_heds_dxcov_hsd_dxcov_incomeiditemresp

Get the data

Download CSVno account neededBrowse on Redivisexplore and queryCroissant metadataHugging Face, Kaggle, OpenML

Or load it directly in R or Python:

# R
install.packages("remotes")
remotes::install_github("itemresponsewarehouse/Rpkg")
library(irw)
df <- irw_fetch("estrella_2023_hakim5")
# Python
pip install irw

import irw
df = irw.fetch("estrella_2023_hakim5")

How to cite

@article{Estrella_2023, title={Healthcare experiences among adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder in the United States}, volume={46}, ISSN={1464-5165}, url={http://dx.doi.org/10.1080/09638288.2023.2176554}, DOI={10.1080/09638288.2023.2176554}, number={4}, journal={Disability and Rehabilitation}, publisher={Informa UK Limited}, author={Estrella, Emma and Frazier, Patricia A.}, year={2023}, month=Feb, pages={731–740} }

Version and provenance

IRW versionv470
Redivis datasetitem_response_warehouse_6 v4.0
Redivis dataset DOI10.57761/4e8w-c240
Manifest pin for this IRW versionv4.0
Metadata sourceirw_meta v29.0